Tag Archive | chemo

Energizer Bunny Losing Power…

I have found that even “My Energizer Bunny” Bobby…
is evidently running low on power…
His batteries are weak…
New chemo has brought bouts of violent vomiting…
weakening him so much…
Can’t eat…
Can’t relax…
Can’t sleep…
Mentions pain in stomach…
With chemo being changed…
once a week every 3rd week…
no pump to take home…
one drug that was breaking him out so bad…
effecting his eyes, nose…skin… taken off…
I am seeing the photo developing…
I am trying to let the boys know… what I feel…
They want to dismiss the facts I can tell…
and I would too…
but, I will have to be the strong one I know…
It’s a terrible feeling of standing watching someone you love so much…
suffering…
I pray we can make the Honor Flight this weekend…
a “good closure” to my Bobby’s life…
coming full circle from the time we met over 48 years ago…
I see the Glory of an Almighty God that has held us when we cried…
listened to our prayers… and answered with time to get some things done…
we will continue to move forward …
we never lose Hope…
for each moment shared will help me to have the strength for the next chapter in my life…
and Bobby to leave this Earth to a Heavenly Home that is free from disease and pain…
thank you Jesus…
I have felt your presence daily…
Amen…

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Continued from…

https://babyjill7.wordpress.com/2017/05/10/va-hospitals-other-favorite-saying-just-go-to-emergency-room/

We have talked to Doctor (Oncology) … and head nurse of same department where Bobby gets his Chemo Treatments…

After looking at him and discussion…

Chemo is suspended for a couple of weeks… to give his body time to heal…

That sounds funny to me…”time to heal”…when the Chemo is supposed to be trying to heal this Cancer!…

but, evidently the mix up on mixing the chemo drugs… was the culprit…

He is feeling slightly better…

Eyes still running some along with nose and other areas… but, “better”…

Taste is coming back…

Tips of fingers are so raw

suggested soaking in Selsun Blue Shampoo…

{Selenium: An essential mineral that is a component of an antioxidant enzyme, glutathione reductase, that is key in tissue respiration.}

YES!… what you use for dandruff… and what he has ben using for his dryness caused by Chemo drug…

Learning every day…

A scan will be given before next treatment … and then talk with Doctor and back to regular treatments if all is a “go!”…

I want to say both Doctor “Robin” and Head Nurse “Kristen”… were there for us today…

giving great care and concern in getting to bottom of problem…

I know “WE” want immediate answers…

“WE” want our priorities met!…

“WE” want this to NOT be happening…

Making us frustrated … 

impatient…

 

worried…

heart broken…

and if truth be known…

JUST WANT THIS NOT TO BE!…

 

 

 

 

Bobby’s Progress… and Treats Given…

Bobby had his scan on Monday…

We always get the results on Wednesday when he goes in for Chemo Treatment… (every other Wednesday)

(scan is done after every 4th treatment)

An agonizing time for both of us…

I decided to take the Oncology Department some goodies for “Easter”…

our next appointment being after Easter Weekend…

I made fudge…  

 adding a few flower sprinkles for color and make the pieces more festive…

 

I had a kit… which has everything in it to make about 1-1/2 pounds of fudge…

PLENTY!…

I cut the pieces in small squares and put in small muffin papers before putting on my clear “Bunny” plate…

 

 

and tied up with Easter Cellophane Bag and bow…

They deserve to be treated kindly… for all they do to make my Bobby feel good when he comes in for his treatments…

kind words…

a pat on the back…

joking…

encouraging…

A “special” job…

“Special people”…

 

We leave early to go downtown to the VA Hospital…

the day is shining bright… … and ei9t’s early!…

 

we turn to go up the hill to the hospital …

 

Visible above the tress…

 

We valet park… found to be much easier… and no charge/no tipping… are the rules…

We are assigned a room for the day…

he in the bed with his IVs… of 3 or more meds…  

and I take my place near him in my chair

Wednesday is Popcorn Day at the VA… and always buy a bag or two  … one to eat as I read my book… watch TV…etc. …

and sometimes one to take home…

His port is accessed…

and Magnesium is started if in need…

and with these drugs… it usually is low…

I go and get him a little breakfast as we wait for blood work to come back…

they have a nice cafeteria at the VA Hospital with kind people… waiting on you…

With the new med that has been added…

Benadryl is taken… Ativan… Steroids, etc. …

and blood pressure has to be monitored…

It seems to raise his  pressure…

but, being somewhat stressed has it’s effects also…

The Doctor comes in… and we actually “hold our breath”…

he is very direct!…

“his Way”…

but, we get honesty… which we do want…

There are 3 spots in his diaphragm they are keeping a close watch on…

“No new growths”…

but, cancer cell # is rising (which is not good)…

he was 230 when discovered cancer…

dropped to 5-6 at end of first year…

then came back…

went to 10-11…

went 15-16…

and now 30-35…

and we nearing another year!…

so… as you see… we are concerned…

Goal was to remove two previous meds… but, he will have to remain on them at this time…

Three total… given through port… and a pump to take home for two days… Taken off around 1:00pm on Fridays…

This is our routine now for about two years…

“We have been given time!”… (Thank you Lord!)

Now…

the Doctor would like to try a new med but, will it will have to be approved

Will take a month for the approval if given… NO guarantees!…

So… we feel like we have heard “the news”… which is terminal cancer

all over again…

Definitely makes you sink…

and the tears flow for both of us

The girls… “nurses”… social worker… nutritionist…

we have several who come in to check changing bags of meds… resetting machine…offering snacks/drinks and sometimes just stay and talk…
That’s what we like best…

so… as you see…

a treat to brighten the day in this department is welcomed…

 

Caring Hearts… One Year Gone!

I pray in a year from now… I can see some positive results from this decision…

and then maybe… just maybe… I can live with myself… k13738002

 

https://babyjill7.wordpress.com/2015/12/28/live-with-myself/

 

This was written one year agok20477788  … so this is the update…

Bobby is still here… and doing good… even with the words “terminal cancer”… 

k24472835

Taking chemo every other week with a few days on pump

Will be one year in January… and we are grateful and feeling blessed!…

Doug has adjusted to his “new home”… k19685454

Would rather be home here with us… but, gets to come a couple of days a week to spend the night…

We still do our thrift store shopping… antiqu_c

order pizzak22727100 or I cook something he likes…

Changes I have seen…

Taking meds with no problem…

Very helpful to us when he’s visiting…

More caring… k13681420

More thoughtful…

More polite… k23558971

Has made friends…

Talks to all of the residents where he lives…

and they think he’s the greatest…

Compliments from staff and many times…

I hear the words…”I just love Doug!… He’s such a good guy”

Laughs a lot… k14833942

Tells stories of what is happening around him…

Shows compassion to other residents… k7840958

wanting to buy them small gifts they don’t (can’t) get…

He has Doctor Care k8110813 and Therapy regularly…

It still hurts when I drop him off some days…

wishing more for his life

but, inside I know it’s so much better than it was…

There have been family members that have been so good to him…

with cash money  k16981841 … gift cards k8942976and small gifts

every now and then…

and I am so thankful for them!…

He knows who really cares by these gestures…

I realize we cannot take on all who are in these situations…

but, it makes me feel grateful for those who have loved my son that much…

I wish he had more visitors… k14916867

His Dad and I are really it…

I feel sad for him…

He goes with us to visit his brother/sister-in-law/nieces/nephew…

but, I would like people to want to visit him…

That I have no control over…

He gets out and walks around the area where he lives…

to a store or two … k24464548

He has lately started to take some of his things back with him

He didn’t want his items taken… (which I can understand)…

Anywhere there are lots of people in one area you take that risk…

My main liking of our situation is the growth I see in him…

and the peace we have in our lives…

Thank you LORD! angel

 

 

 

 

 

Bobby Update and Pumpkin Bread!

Update on Bobby:

He is still getting Chemo Treatments every other week… k21072773

still wearing Chemo Pump home for two days after…

Blood work comes back good… k35624508

No more Palliative Care…”OUR DECISION”!… too depressing!… k15738866

He has large cataract on right eye now… will be seeing Doctor concerning when it will be removed next week…k31027081

Chemo will not be given for 2 weeks… and then surgery… and then back on Chemo two weeks later…

Makes me apprehensivek33319024  but, they assure us it will be OK…

Doing about anything he wants to do…

Put up new Porch Light on back porch today… entry_c

Never stops!…

The neighbor insists on cutting grassk34786073 (which was done when returning from hospital this afternoon)…

and I personally think it takes some harder work from Bobby… which I’m thankful for…

PUMPKING BREAD baked for helper… and one for us…

So good!…  

OLYMPUS DIGITAL CAMERA

This Mix comes out every Fall Season… and you can’t make any better!…

The smell this morning was awesome…

OLYMPUS DIGITAL CAMERA  OLYMPUS DIGITAL CAMERA

It includes:

Can of Pumpkin…

Bread Mix…

Frosting…

YOU add 4 eggs

oil… and water…

OLYMPUS DIGITAL CAMERA  OLYMPUS DIGITAL CAMERA

Looks and tastes delicious!…

 

“Praise BE!”

Some may wonder about my Bobby…

being told terminal…

and still going strong…

ATTITUDE!… and keeping GOING!… Active!…  seems to be the clue…

He is taking Chemo… much stronger with some side effects…

and for 2-3 days after coming off the pump… he is weak… no energy… and has gotten dry heaves… twice…

During this he never actually stops…

I try to talk him into taking it easy these days…

but, it is not in his nature…

be-thankful-every-day-card-nature-background-52116294

“I have things to do!”, he says…

“I can’t just watch TV… sit still… lay down… I am just not made that way!”…

so doors are hung… repaired… floors put down… trimming done… locks fixed… running here and there for parts… car is cleaned and washed…

helps me when in need… takes people if they need a ride…

Maybe this is the secret that makes him keep goingchemo working to give him more days… blood levels great…

and Doctors impressed!…

Of course we know we have the greatest help from our Lord… and we attest to that every time…

Bobby saying, “I asked the Lord for more time… and He is answering!”… worship-praise-silhouette-man-hands-raised-sunset-concept-religion-prayer-42264053

Praise Be! … an expression of relief, joy, or gratitude.