Tag Archive | palliative care

Palliative Care Meeting #2…

Palliative care (pronounced pal-lee-uh-tiv) is specialized medical care for people with serious illness. It focuses on providing relief from the symptoms and stress of a serious illness. The goal is to improve quality of life for both the patient and the family.

Palliative care is provided by a specially trained team of doctors, nurses, social workers and other specialists who work together with a patient’s doctors to provide an extra layer of support. It is appropriate at any age and at any stage in a serious illness and can be provided along with curative treatment.

 

This is what Bobby and I are going through…
We met with a team again today…

discussing our feelings…

our questions (concerns)…

our knowledge of what Bobby is experiencing with the cancer he has…

We discussed DNR… Do Not Resuscitate… k4969800

and some of Hospice Care…

We were told again that his cancer is terminal…k21223976

Not that you have a specific date of “death”…

but, that the cancer will take his life…

No matter how you take in those words…

you cannot actually breathe at that point…

your whole being is shouting from inside NO!…

Don’t say those words!…

We look at each other reaching for each others hand…k13560373

The tears come to my eyes… and roll down my cheeks…

I am grasping the words…

but, so wish I wasn’t!…

They ask us questions… and we relate again to this group of professionals that “we are our own team”…

Have been for 47 years… and will continue to be until our last breath is drawn…

They seem amazed at our truthfulness with each other…

our way of thinking and coping with this news…

We have always discussed everything together… so we wonder why others find it hard to believe of how open we are on the subject of death…

but…

isn’t death a part of life???

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Bobby explains his “ring” (circle) scenario… a beginning that travels around until it meets it’s self again… k7533959 …

a continuum of a life we committed to each other many years ago…

Bobby expresses his Faith… in that he always asks God to forgive him of any transgressions when praying… He wants forgiveness before he asks anything for himself and others…

His desire is to please his Savior…

I express to the Pastor that is the last to see us… that “God” is beside me all  of the time… but, when we speak to Him out loud… in prayer… together…

we feel His Presence and Strength … lasting and protecting us from thoughts and words that hurt us…

We are as ONE!…

The Son, The Father , The Holy Spirit and Us!…

and through this relationship that we have formed

we will sustain…

we will be brave…

we will comfort others as they comfort us…

Our Lord will keep us in His Hand as He does anyone who believes…

Praying before we leave with a servant of the Lord was a good ending of our meeting…

 

 

 

 

 

Blessings Keep Coming!

After the sisters left to go home for Georgia it was so quiet…

Their laughter and sweet voices are so welcomed… On Wednesday we had a visit with the Palliative Care Team… at the VA Hospital…

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After being reassured by the at VA Nutritionist and sister-in-law that it would be beneficial… we opted to attend…

We were greeted by five members of the Team…

A Psychologist… a Social Worker… Lead Doctor… Doctor Assistant… and Chaplin…

We were asked about our concerns…

and his well-being…

Thoughts we had… and worries that might be bothering us…

What a question??? YES!… we are all of these things… but, their mannerisms were caring… and they took notes as we talked…

I imagine every time we have to face this issue… it will give us a better understanding…  for better words…

They commented on our “togetherness” in this happening in our lives…

and seemed to be in awe of our openness… with each other…

After 47 years of marriage… and the obstacles… happiness… and love we have shared… It is another hurdle we have to meet head on and get through…

The hardest so far!…

They are available at any time… even without an appointment…

if we have concerns… come to them…

It is always good to have support with close friends/family… but, professionally too!…

We left after Prayer with the Chaplin who I had met a year ago when Bobby’s first cancer arose…

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Friday we met with my brother and his Grandson for breakfast…

at Wagner’s Pharmacy/ Restaurantbldg… where the … Jockeys… Trainers  and Visitors to Churchill Downs main-menu-logo

come for home cooked breakfast and lunch…

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Had a nice quiet time and loved being with his Grandson Elisha…

Feeding him my fried potatoes… food1

Children can brighten any day!…

Thanks Brother!

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It has rained so much here in Louisville…

and it sure can keep your attitude… a little down…

but, today is sunshine… warm… and will last a couple of days…

We are so glad!…

My two sons… Grandson and Bobby painted woodwork in kitchen/living room yesterday…

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Oh… what a difference it made…

The rest looks fine… and with a new kitchen floor… we will feel so much better…

A few more things we want to accomplish… while Bobby has energies…

and with the willing help of my other guys… we will have the house in order…

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My sister has been one of my blessings…

She calls… visits… and lifts us up in prayer…

We have always been close… and her and Bobby are like brother/sister…

She brought him a Prayer BlanketOLYMPUS DIGITAL CAMERA

RED… White… Blue… for this proud Veteran…

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It was blessed by the priest… and has a rosary attached made by a Downs Syndrome girl for her contribution to others…

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We are not Catholic… but… God is Savior for all people…

We just live by where God found us…

and titles mean little in HIS eyes…

Bobby was so pleased and it will always be special during these times and later…

He immediately put it across his shoulders as we sat outside…

Thanks Sis!…

 

 

 

 

 

 

 

 

 

 

The Best Feeling…

 

I now know…  comfor_c

sadness…

what anxiety is like…

depression…

All… are not good…

I watch my husband hurting so much…

in his thoughts…

I hear his prayers… k9641379

I hear his desires…

I hear his fears…

I have no doubt about his salvation…

He had professed it when he was young… and ever since…

That I am so grateful for

I know keeping “busy” is the only help for us right now…

Having my son, Doug come over…

He helped us so much this weekend…

Cutting grass… k8201709

helping his Dad get dirt and mulch for the front yard…

they play tickets together…

and I smile…

Neither will ever be wealthy… but, this small bond is awesome…

My Brian calls with arrangements for Mother’s Day… k15507705

and places a bet for us on the Kentucky Derby…

and we find that we all have picked the same horse

but, we lost!…

Bummer!…

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The Winner!

My oldest Granddaughter has been accepted to a program in college she has been wanting… Love good news!…

the youngest Granddaughter has picked out her 8th Grade Grad Dress…

and is going to look just beautiful in it…

The youngest Grandchild… a Grandson… cuts grass to earn some money…

He is not afraid to get dirty or work for his savings…

Already showing signs of responsibility…

To see these things… Makes Bobby so proud… prdprnts

as he thinks of wanting more time with them…

wanting to be in their future…

but, alas… like their other Paps… Poppy will not be there…

We go to my nieces for the day on Tuesday… at Rough River…

she has planned lunch and we hope for a pretty day to be outside…

Wednesday… another treatment all day…

and then Palliative Care meeting on Thursday… k2507145

DO NOT want to go!…

Don’t want to hear these things…

Maybe we won’t!…

Friday… his sisters come up from Georgia…

The best meds/treatment he can get!… k20933269

The most loving… caring… sisters… in the whole wide world!…

and we will laugh and surely cry… but, being together is so needed…

I wish all of you Mothers… a beautiful day!… k19234564

if raining like here in Louisville… still enjoy your family… sons and daughters…

The best feeling!…